Dr Sally Pezaro from the School of Nursing, Midwifery and Health at Coventry University is inviting maternity staff to take part in a survey exploring maternity staff’s experiences and understanding of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder.
The purpose of the survey is:
- To explore awareness and knowledge of hypermobile Ehlers-Danlos Syndrome and (hEDS) and Hypermobility Spectrum Disorders (HSD) among maternity staff.
- To explore what decisions maternity staff may make when caring for a women with hEDS/HSD.
- To indicate how maternity staff could be supported to care for women with hEDS/HSD.
Health professionals providing clinical maternity care in the UK, Ireland, USA, Canada, New Zealand, or Australia over the age of 18 years have been invited to take part.
You do not need to have experience of caring for women with hEDS/HSD for your answers to be valuable.
Recommended reading Hypermobile Ehlers-Danlos Syndrome during pregnancy, birth and beyond.